MASTER THESIS

Under 12 & Epileptic

 
 
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Background

Epilepsy is an unpredictable and isolating disorder

Epilepsy is a neurological disorder causing the brain to have sudden bursts of electrical activity - this leads to what we know as seizures, an unpredictable, possibly life threatening and sometimes seemingly invisible impulse that can happen anytime - anywhere.

Families raising epileptic children has so much in their life that is out of their control and the constant worry that something might happen is tearing them apart and isolating them from having a functional everyday life.

 
 
 
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What people see

Seizures

 

What people don’t see

Anxiety

Fear

Social isolation

Stigma

Insecurity

Depression

Fatigue

Poor body control

Loss of senses

Pain

 
 

I don’t sleep much anymore and I’m constantly worrying that something will happen when I don’t pay attention. we don’t often leave the house because of it.

- Mother -

 
 
 
 

 The challenge

How might we assist epileptic children and their families to find balance and understanding throughout daily life?

> Read the full report

 
 
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Step one

Collect data

Continuously reading brain activity is vital in understanding when and if a seizure will happen - as well as the severity and characteristics of the attack. This wearable high precision EEG patch is placed on the scalp above the affected area of the brain - providing accurate results equal to hospital equipment compared to other devices claiming that pulse or hear rate measurements can predict seizures, which is not true.

#Connected #Waterproof #Soft

 
 

Make it
valuable

Brain activity data is overwhelming. Turning it into something useful and understandable is key in making the child and their close ones part of the disorder - a first step in giving confidence back and avoiding social isolation.

Using the same data presented in two completely different ways enables the hole family to stay involved and feel confident.

#DataSelection #Human #…

step two

 
 

Step three

Reflect together

Communication is key in making families with Epilepsy find balance. By providing a system that works as a conversation starter challenges and feelings becomes transparent. Helping everyone to overcome the fear of the unknown.

#BetterTogether #Human #Soft

 
 
 
 
 
 
 

“Eppi is enabling not only the child, but also siblings and friends to take part in the diagnose, avoiding the stigmatisation they experience today”

EP Nurse, Umeå University Hospital

 
 
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Meet Eppi

Someone just like you

Eppi is directly mirroring the brain activity data collected from the patch through emotional expressions, sounds and vibrations, encouraging the child to reflect on what is happening and what Eppi needs. Together they grow over time and Eppi’s communication becomes more advanced by combining different expressions into unique flows. As they get to know each other the child is able to link Eppi’s feeling and reactions to it’s own.

> See how I explored expressions together with children

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The App

Numbers doesn’t tell you anything

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